American RSDHope was established in April 1995 by Bob, Lynne, and Keith Orsini. It aims to support CRPS patients and educate the public. Keith has suffered from CRPS since 1974 and the family's firsthand experience drives their dedication. The organization started as a local group before expanding online. Despite personal sacrifices, they've reached millions through their website. The organization doesn't offer medical advice but serves as a resource hub. Sadly, they lost family members to cancer but continue their mission. They emphasize collaboration with healthcare providers and encourage patients to seek and share information for improved care. They provide extensive online resources but recommend consulting with medical professionals for individualized treatment plans.
https://rsdhope.org/